Having epilepsy or caring for someone who does can be challenging. When epilepsy is diagnosed, it affects the whole family. Sometimes the practical problems of daily living – from insurance, to jobs, to medical care – may seem overwhelming. At other times, it helps just to talk to people who understand what its like to live with epilepsy.
Some people and their families living with epilepsy report a need for support and education within the epilepsy community. The Epilepsy Foundation Metro DC and Networking Groups are designed to provide this to those who are interested in connecting with others living with epilepsy, and to learn from guest speakers on topics associated with epilepsy.
There are a number of support and networking groups available to people with epilepsy and families in the DC metro area. Unless listed as an Epilepsy Foundation support group, the groups are not affiliated with the Epilepsy Foundation.
For further information on any of the groups listed below, or if there is no group in your area and you wish to start one, please contact Jessica Deering at firstname.lastname@example.org.
Note: Many support groups are offering virtual programs. Please contact the group directly to learn more about meeting dates and registration.
EF DC is starting its first support group for adults living with epilepsy. The group will meet monthly. Contact our office at email@example.com for more details.
The Parent Support Group and Discussion Series provides an opportunity for parents of children with epilepsy to gather, increase knowledge and share experiences living with epilepsy. Each session will cover a topic of interest specific to parenting a child with epilepsy.
Meets: This group currently meets virtually via Zoom on the fourth Thursday of the month.
Various Locations – Washington, DC and Fairfax, VA
Offers free Epilepsy Family Education Support Groups.
Meets: Second Tuesday of every month from 5:15 – 6:30 pm at the Fairfax location and the Second Wednesday of every month from 5:15 – 6:45 pm at the Main Hospital
More Information: https://childrensnational.org/departments/center-for-neuroscience-and-behavioral-medicine/programs-and-services/epilepsy-program/resources-for-families/epilepsy-family-education-support-group
Central United Methodist Church
4201 Fairfax Drive
Arlington, VA 22203
Come to our parent support group meetings and meet other parents of children who have seizures. These meetings are a great way to connect with other families who have similar experiences and to get helpful information and resources.
Meets: Fourth Tuesday of each month from 7 – 8:30 pm.
More Information: https://www.meetup.com/Epilepsy-Parent-Support-Group-for-the-DMV/
Holy Cross Health Conference Center, Education Room 1
1500 Forest Glen Road
Silver Spring, MD 20910
Holy Cross Health’s free Epilepsy Support Group meets every other month and welcomes people with epilepsy of all ages, along with their family members and friends.
Meets: Third Wednesday, every other month from 6:00 – 7:30 pm
More Information: Call 301-754-8800 or HolyCrossHealth.org/support
2990 Telestar Court
Falls Church, VA 22042
Our support group is for adults living with epilepsy and provides encouragement by helping patients meet others who have overcome challenges like their own. You will find acceptance and comfort from knowing that you are not alone.
Meets: Second Tuesday of every month from 7:00 – 8:30 pm
More Information: https://www.inova.org/epilepsy/support
New York Presbyterian Church
1313 New York Avenue, NW
A diverse group of people with epilepsy/seizure disorders. Sharing stories and making friends.
Meets: The first and third Thursday of the month (Labor Day to Memorial Day) from 7:00 – 8:30 pm
More Information: https://www.meetup.com/Washington-DC-metro-Epilepsy-Meetup/